Monday, August 24, 2009

Momma has Lupus

It's official. It's not what we expected but it is what it is. It's an answer and now we can start treating it. Hopefully I won't get sick(er) and I'll feel better soon.

Jordan is amazing. She keeps telling me not to think about it. "Just take the medicine because it will make you feel better!" She would know first hand too. She told me she'd help me when I felt bad and she said if I need shots like her she'll hold my hand. She's such a sweetie.

Both kids started school last Wednesday. Matthew loves it so far and Jordan is happy to be back. She gets so bored after so many days of not doing anything. We did stuff over the summer but the girl loves to learn. I hope she stays this way.

First day!

Miss Jordan got glasses! Just for reading but knowing our family she'll eventually need them all the time at some point.

And this is a tiny little lizard the kids caught outside yesterday. I guess there has been several in the yard and they finally were able to catch one.

Sunday, August 2, 2009

August already

In a little over 2 weeks my Bub will be starting his school career. Hard to believe that next month that boy will be 5. He's excited to start school and he's hoping to be in class with his friend Jake. I on the other hand am hoping he is not. Matthew and Jacob in the same class would be hard on the teacher. The boys love each other and would talk and play when they should be learning.

Miss Jordan will be starting second grade. I remember her first day of school like it was yesterday and it just doesn't seem possible that she's already starting second grade. She's more then ready to go back. She gets bored so quick these days so she's counting down to 8/19.

She saw Dr. B about a week ago and for the most part Jordan is doing really well. Her eyes are clear which means the Humira is working. Jordan hasn't been able to go without a uveitis flare in years so her being clear for 6 months is huge! Her right knee isn't really bad but it isn't good either. She does have some swelling and her ankle is warm but not swollen so for now she's back on naproxen twice a day for a month and we'll see how she does. Dr. B is afraid J is trying to flare again. Hopefully not but is she is we'll deal with it just like we always have.

I know there are other JRA families who read this from time to time so I'm adding a video of Jordan doing her Humira injection. She really hates this one because it stings but she knows it helps and she needs it.

video


Some fun before school starts :)