Thursday, February 10, 2011
It's the little things that bring tears to my eyes
There was a time when I wondered if she'd ever be able to do something like this. In the past Jordan would jump for a bit then do something else. I knew the next day she'd be in pain and swollen but how do you tell your child she can't play with her brother and friends? We never did. We figured Jordan knew her body and her limits. She quickly learned what happened if she over did it.
Since starting Remicade, Jordan has been doing very well. Her labs are all back to normal, swelling in her joints is gone and she has NO inflammation in her eyes! NONE!!! And she can jump. She jumped for at least 1 hour on Tuesday with my cousins kids. She was tossing herself all over the place and I figured this would be our test to see how well the infusions were working. No pain the next day. She's fine.
Infusions are now spread out to every 6 weeks. As long as her eyes stay quiet and labs look good we'll stay at 6 weeks or maybe even go to 8. She's still doing MTX at home and we're increasing her leucovorin to help with the nausea. We'll see if that helps.
I think for the first time in 6 years she's really pain free. I pray this puts her into remission.