Monday, February 21, 2011

A little look at J's infusion

video

4 comments:

Deetipton said...

What a brave little one you have! Emily is 9 and she still cries, screams and panics with every IV. I'll have to show her this tomorrow :) Way to go, Jordan!

Stacey said...

I don't know why Jordan is so calm. She still needs the emla cream and she refuses to go without it. She will only allow the IV in her right arm. She has to be in some kind of control. We are having issues with her MTX right now. She doesn't want to take it and it's become a huge fight. Last night she refused to do the shot so I crushed my MTX pills and put it in applesauce. We'll see how she does next week.

Deetipton said...

Emily still uses Emla, too. I don't think she really even needs it anymore, but she *thinks* she does. Em only wants it in her left arm, and refuses to have an IV anywhere near her hand. She really only wants it near the elbows. She's running out of options.
We're blessed on the MTX situation. Emily loves it. It makes her feel better. I think I have the only child that doesn't hate it. I've heard so many say that they have the big fights, too. Have you thought any more on the CellCept?

Living AutoImmune said...

I don't want to mess with meds. This is what's working now so I want to stick to it. I know the MTX feeling and I hate it so I can imagine how awful it must be for the kids. Jordan and I were on the same dose and I felt terrible. I'm not looking forward to upping mine but I have to.